5.22.21 Ileostomy Day 2

Good things today. A little practice emptying the ostomy bag. A little bit of j feeds started. Managed to spend a couple of hours off of bipap. She has had a few shaky episodes and has low blood pressure, so we are going to add an IV bolus this evening in addition to the continuous IV. 

Tomorrow we will work on increasing the feeds a bit more. We are taking it really slow, not even doing her vitamins or non-essential meds so that her GI system is not overwhelmed. She is having discomfort even with the bit we are trying. 

Lost our first IV due to infiltration, which caused pretty major swelling in her arm. Thankfully Ed caught it pretty quickly and we got her arm bands cut off as they started digging into her. 

She is understandably quite sore and tender, but no big pain crisis and overall a calm day. Ed was able to be with us last night and is now at home with the other 4. I am so grateful to be here taking care of her as she recovers. Focusing on just her for a few days is rewarding. She is strong and we are all so blessed by your prayers and messages.