5.25.21 Ileostomy Day 5

Well we learned how to change an ostomy bag. That was trickier than I had expected. Partly tricky because it was fresh and there are small wounds on her belly and stitches around the stoma. It made me feel lightheaded to be messing around it, around a recent surgery site on my girl. I will get used to taking care of it of course eventually, but it was a difficult beginning. 

Aimee is doing really well herself! She has increased her feeds to about 67% of her goal and decreased her IV fluids again. Unfortunately she maybe losing her IV again. The foot has swelling in it. The nurse has been in here every hour through the night to measure it, keep it elevated, and replace a heat pack on it. We just need it to hold on a tiny bit longer! 

The surgeon wants her to be a full feeds for 24 hours to see what her ostomy output is at that point and decide if she will be able to stay hydrated without any additional medication. Before the surgery, we had originally hoped and planned to be going home yesterday. 
 
Best of all, Aimee was alert and happy last night. She was engaged and even gave us a couple of grins. Ah that feels good to see!! 


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