11.2.16 Mending

Aimee is recoverying from this first cold of the season that started with that day of seizures at school a few weeks ago. We are working to slowly move her back to her normal feedings and routines. She is working with us to get her airway cleaned out and to rid herself of some eye infections. The one little challenge we are having in particular is an open wound on the bridge of her nose, which was created by extra bipap use. It is really difficult to get rid of skin breakdown on her face, because she still needs to use the bipap, still needs the cough assist, and because she keeps reopening it with her waving arms/hands on her own face. We are making an (unauthorized) attempt to put her on oxygen only for a couple of nights to allow the wound to heal. Praying her brain remembers to keep breathing and that her wound is finally able to heal.