Today is a much improved day. It has been a frustrating stay, because typically when you are admitted the job of making decisions and caring for the child goes from the hands of 1-2 parents to a committee of 10+. This stay was planned and she is perfectly healthy. Simple, daily tasks must be approved. It took hours to get her on bipap, because I had to consult with the neurologist, the wound care specialist, and the respiratory therapist first. I had to get special approval from the dietician and the formulary nutrition room to pour the prescribed formula liquid hope that I brought into the feeding bags without diluting it. They insisted that it would not go through the pump, which is the same pump I use at home and that if any water was added I would not be allowed to mix it. It would have to be done in the nutrition room.
Now that we have established what is allowed and had bandaging for her nose wound approved, ect it is much more calm. The staff here are generally very helpful and friendly. Once they understand that I actually know how to take care of her, they start to give some freedom. I know they are just operating under the rules that are there to protect them and the kids.
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