10.21.16 Gem in the Muck

In the middle of the muddiness of looking back at the past, there is one shimmering light. 

We feel a responsibility for not recognizing Aimee's seizures early on and having them treated. It is heartbreaking. Yet, this new information is creating a hope as well. In the past we have been hesitant to ask Jesus to heal Aimee. When we prayed it was more along the lines of protection and maintaining health. We didn't know if this was what God intended when He designed Aimee's abilities. We couldn't ask Him to heal her brain, because as far as the information we had, it wasn't broken. We thought, based off the information given to us at that point, that there was some type of genetic mutation that caused all of her symptoms. We thought it was static. God made her this way. We love her. We're thankful that He made her. 

Now, we have this new understanding. There is a change in her genetics (though we don't completely understand it all yet). This is causing a processing error in her nerve communication basically. It is messing up the potassium channel and has caused seizures. We still don't know how much of Aimee's limitations are because of the seizures. We don't know how well her body would have communicated if we had stopped, slowed down the seizures earlier.

What we do have now is this new ability to pray, to ask God to restore Aimee to His design. What does that mean specifically? I don't know yet. I think it means communication. I think it means more ability. I think it means that her sweet spirit is intact and the way He designed it to be, but her brain and body have been hindered from their true design.

Will you pray with us?  
(Aimee meeting Caleb's new birthday bunny)

No comments:

Post a Comment

We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

Please be aware that I do moderate comments, so it will not appear immediately. If you have any trouble commenting, feel free to email us your thoughts to edr2005@gmail.com.