Aimee had a full day of appointments yesterday. We started out with a renal ultrasound, which is to monitor kidneys and bladder. Next, we met with her respiratory pulmonologist. He was pretty concerned about the continuing ulcer on her nose. We also discussed the plan for this sick season, getting stocked up on supplies, and determining what specific numbers mean we need to get doctors involved. It really gives me peace of mind to have these criteria agreed on between us ahead of time. From this clinic, Aimee was sent to the lab for a blood draw to check electrolytes and carbon dioxide levels. We then met with the Urologist to review the ultrasound findings, which were perfect. We increased the urinary cath size and finally ran over to the pharmacy for meds.
Monday is the long awaited appointment with the genetic neurologist to learn all about KCNQ2.
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