10.6.16 Confirmed

Though we have yet to receive the official   diagnosis, the Neurodevelopmental doctor did let us know that the clinical testing confirmed the genetic research. KCNQ2. Letters that we had never even seen put together before. In November we will learn more from the Neurogenetics clinic. 

In other news, the trial of the irrigation enima was a major failure. This means that our remaining options are all surgical. We feel that we can continue with the prescription enimas for now, but are concerned about what comes next. The medications are already becoming less effective even in adult doses and combined. 

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