Interestingly enough, from a little google search, REM sleep is currently associated with learning, particularly learning physical skills. In fact, infants and toddlers experience much more REM sleep than adults. Never having any REM cycle sleep certainly is not doing her any favors!
At this point we will continue with her BiPap machine on the same pressure levels.
In other news, due to a scary mixup on the morning following her sleep study that caused us to give Aimee double doses of her seizure meds, we have decided to track all of her cares throughout the day. I was excited to find an app that allows me to track everything (temp, fluids, sleep, seizures, moods, symptoms, meds, ect). Aside from avoiding another error like the one we just had, it will also be really helpful to me in prepping for doctors appointments. For example, I want to talk to her neurodevelopmental doctor about her fluctuating temperature. It will be so helpful to have documentation showing the low temps and other factors that might influence them.
Aimee got a wonderful stand alone hammock this week from her ABM therapist. Since she has outgrown her hand-me-down tumbleform chair, it is wonderful to have another indoor place for her to sit alone besides her wheelchair. Especially on days like this when her chair really must be washed!
Doesn't she look like she is enjoying herself. Even loving to share with her baby brother.
The hammock chair is brilliant and she does look very pleased with it! Little Princess!
ReplyDeleteTell those babes Auntie Jen loves them.
Do you give Aimee melatonin? Sometimes Elizabeth doesn't need it at all, but then we go through times she does. She is on 3mg. We also have a wonderful white noise machine that I think really helps her. Geez I wish we lived closer!! I cannot express how much I'd love to help you and Erica!
ReplyDeleteThe swing looks awesome! We got Elizabeth something similar...and are now in the works of setting up her therapy room as we just got all of the equipment :)
HUGS!