11.22.17 Appts

A long day of appointments yesterday. 

The first was with Rehab. We discussed a lot of equipment details, confirmed the type of parts ordered for the chair, discussed how to meet future equipment needs during surgery stays, and talked a lot about pressure spots. The doctor checked over Aimee’s muscle tone and we talked about some strategies to make the foot and elbow braces work without causing skin breakdown. 

The one surprising part of this appt to me was the reintroduction of concern over Aimee’s left hip. She said that the hip was 50% out of socket according to the September x-ray. The surgeon had said that it looked fine at that point.... but maybe he just meant it didn’t need immediate or current attention. The rehab doctor wants it followed, because if that one hip goes out, it will cause major imbalance of pressure through her pelvis. Aimee definitely has been posturing herself in a way that could be adding to the problem. Hopefully this trend does not continue towards a bigger problem down the road. 

The last little tidbit from this appt was a referral to have more appointments at Providence with an OT and a PT following complete recovery from the spine surgery to discuss new recommendations for at home positioning, stretching, and routines.

The second appt for the day was with a nutritionist. This was a detailed look at Aimee’s nutrition status to help ensure she is in the best position for completing healing of her wound. She is having blood tests done to look at specific nutrient levels. She also took measurements and evaluated Aimee’s condition. She recalculated Aimee’s goal and set a couple higher numbers for us to shoot for over this coming week. Aimee hasn’t lost very much weight, but I can tell that some bones are more prominent. She has also lost some patches of hair. The nutritionist is having us bring Aimee back in next week to check back on what healing and food progress she has made. 

Our hope is to get her healed and back to a strong position in preparation for the sick season ahead. Unfortunately, we already have a cough going through our house. The older boys have been sick for several days and little Walter is struggling with it now too. So far Aimee remains healthy and we will do our best to keep her that way. 

Lastly, Walter and I met with the midwife to check up after his first week. He was 6 oz past his birth weight already! A little reminding for me to lay down more to bring my blood pressure and swelling down and to generally not push too much, but overall we are both healthy and recovering. They did caution me to carefully watch Walter’s respiratory status as a cough can quickly wear out a young infant. 

Hoping for health.

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