11.30.17 Wound VAC5

Aimee had a good night and is alert today. We are just now trying a tiny 10mls an hour of pedialyte again to see if she will tolerate it through her g-tube. Hoping to attempt a c-tube flush in that ackward hoyer lift hover this afternoon, as soon as they can get the right equipment size for us. 

Aimee’s left lung is sounding coarse, but she is managing well with the little extra respiratory support and positioning so far. She is pretty comfortable and has enjoyed watching a few episodes of clifford on the hospital’s iPad. She loved that!

We met with several different people this morning and rediscussed our options going forward. There is a possibility that we will be able to get the wound VAC machine for home use by tomorrow, which would allow us to go home once she is ready to take fluids and safe respiratory wise. Aside from the dressing changes, we will also meet with the plastic surgeon and spine surgeon again in about two weeks to re-assess the wound and make sure we are on the right course. There is still a long road ahead with this wound it seems.