11.24.10




-Aimee and her new bath chair-






Aimee and I braved the weather this week to travel to Children's on Monday and Wednesday this week. Always fun to add a bit more to that adventure!

We met with Orthopedics and Orthotics first. Her feet are doing exceptionally well. The doctor said if it wasn't for her heel scars, he wouldn't be able to tell she ever had clubbed feet. He is always very proud of his work. Aimee was also measured for a new pair of shoes and a new bar.

We then had our anticipated visit with the GI Nutritionist. She had performed her analysis of the blended recipes for Aimee's diet and...I passed! Yippee! She was so impressed that she treated me the complete opposite of last time. She said I could make substitutions and just make sure that Aimee was getting the average amounts of each category over a weeks time. I'm not sure what happened or if it was actually her malicious twin that I met with last time, but HOORAY!

Wednesday we went back down to see the Adolescent Medicine doctor. Mixed results from this appointment. Our concern is that she may be beginning premature or precocious puberty. She has grown 4 inches taller over the last 4 months (not a huge jump, but still fairly significant increase) and one breast has begun to grow again. There are, however, no other indications that this is the case. To be on the safe side, we had more hormone tests taken. The doctor also had us go into radiology to have x-rays taken of her hand. Apparently the main concern with precocious puberty is that following an initial growth spurt, the growth plates close preventing further growth. In order to determine if this is occurring, they are going to look at the plates in her hand and find her bone age. However, the doctor said that there is a possibility that she is not going through precocious puberty, but that she is just releasing tiny eggs causing cysts that in turn release estrogen. Oh my! That still isn't my favorite answer.

Two weeks and I will be able to call to see if the results have come in on the CMV testing. We shall see! Also, we have decided to proceed with the wheelchair order, pushing for it to be processed this year. I am very excited now that we have officially decided. It will be such a help and Aimee will love it. Maybe we'll get it in time for Christmas...well that might be a bit optimistic, but what a nice present :). Now we just need to decide what color-Red, green or blue. Any recommendations?

2 comments:

  1. red is nice and flashy, blue would go best with her eyes....hmmm, they all sound good!

    I am curious to see what the CMV testing shows...

    ReplyDelete
  2. I love putting Claire in light blue best because it contrasts so nicely with her skin, rosy cheeks and the eyes...but how do you feel about blue?

    Love to You! ~Bethany

    ReplyDelete

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