Aimee is doing great. She had her surgery on Monday and it went way better than we could have anticipated. By the time they called me back into the recovery room she was already awake and looking around. She woke up right on time! There isn't really an explanation for it, because they used the same anesthesia as last time. At this point, it doesn't really matter why.
They did have to burn off quite a bit of granular tissue that had grown around the tubing, but it seems to be healing fairly well. She will definitely have some scaring around the site. We've been working on adjusting to a new system and I believe have all of the kinks worked out.
We received Aimee's bath chair this week and used it for the first time this morning. It is going to make bathing her SO much easier. We still don't know if we're paying for it or not at this point, but we do have the funds to cover it. At that note, the hearing aids cost has been settled completely. Hooray!
I met with the home care company on Wednesday to discuss wheelchair/stroller options. He did bring over a couple of samples to look at and try out. We really like this one chair that is around 5,000 with all the support attachments she would need. It would probably last about 2-3 years, but you can get the next size up seat to fit into the base. We are praying about it this week to make a final decision this Wednesday. We are hoping to get one ordered and through the insurance process by the end of the year. Thank you for praying with us for guidance and provision.
Monday Aimee and I are meeting with Orthopedics and Orthotics to check the progress of her feet and get new shoes. That afternoon we are also seeing the GI Nutritionist to have the blended food we've been making analyzed, see if we pass their tests. Nerve wracking!
Wednesday we are going to meet with the Adolescent Medicine department again, because she has been having some unexplained breast growth again. It is probably nothing to be concerned about, but we just want to make sure.
Happy (almost) Thanksgiving!
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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