Forgive my simple post this evening. I am exhausted and having a difficult time with rational speech and thought. Aimee finally got rest at 4am this morning. We were pretty desperate to have help from a doctor last night. The weekends are less than ideal in that regard. What a relief this morning when the ortho team walked into our room and it was the Nurse Practitioner who had helped us so much here with the wound vac, even coming to our house to help with wound care. So great to see her and her team. She was immediately an advocate for us. She adjusted meds and times and doses. She consulted with rehab and with the medically complex team and the surgeon. They were all pretty amazed at the severity of the muscle spasms Aimee has been experiencing.
This morning at their suggestion, we gave her valium first before transferring to her chair. We had her sit in it for 10 minutes and then gave her tylenol and oxi when she got back in bed. Spasms started once she was back in bed. Not quite as severe, but still causing dry heaving, ect. Lasted only about an hour.
We have a new plan for tomorrow. I originally planned to try again tonight, but was encouraged by the team and the surgeon to not push too hard. Aimee has been doing well this evening, so we are hoping to get her a good night of rest and try again in the morning.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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