She had a tough day today overall. Probably just exhaustion, but it is always a little nerve wracking to see her like this. Hoping it is just finally getting deeper sleep at home. She has needed oxygen/bipap most of the day, been pale, needed to be cathed, needed extra suctioning, and a lot of breaks from fluids. We’re still maintaining hydration though and holding steady at about 30% of calories. The good news is that she is sleeping soundly now and we have no meds to administer for 3 hours, so off to bed. :)
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