11.21.12 Sharing Aimee

Perhaps you wonder why I choose to share intimate details about Aimee's life in this public way. I'm sure some may find it a bit inappropriate. Although we were generally private about our personal life, Aimee has changed that. Our lives have so drastically altered since Aimee was born. I do not merely mean our daily routines. I mean our very life, our being, our hope, our perspective on being a human on this planet, our view towards tomorrow, our joy in simplicity. Yet, I believe, Aimee is not here to only change her parents' lives. In my opinion, Aimee is here for you too. I am much less afraid of the person reading this who might misuse the information, than I am of not doing my part to allow Aimee's light to shine.

Sure, you may not need to know about her appointments or her little struggles. I partly include those for my own record keeping and partly for anyone who carries her in their heart. Yet, not many of you will be able to take time to just sit next to Aimee and learn her language. I am still in 'Aimee 101' myself. So in this intimate, detailed, but distant way, I am sharing Aimee with you.

Below are a few little examples of new things Aimee is learning since her recent trip. It has been such a joy to have so many friends and family comment on how changed Aimee is. People who don't see her often are surprised by her eyesight, her energy, and her awareness. I wish I could have her give you a virtual hand squeeze so you could also be amazed at her strength.

Aimee with her legs crossed over the pommel for the first time. And then she fell asleep. :)

 

Aimee showing new moves to veggie tales tunes. 

 

Also, while I was writing this post, I looked over and this cute little boy was reading to his sissy.  Don't mind the Christmas music two days early in the background. The kids made me turn it on.

 

A few prayer requests:
-Aimee is sick again. I have lost count of how many cough/colds she has had in the past couple of months. Nothing makes me want to take up swearing more than Aimee getting sick again. As you know, a simple cold is so challenging for her (and me).
-She is still having difficulty with reflux and consequently vomiting. We have requested a change in her medication dose and are hopeful that will do the trick. Should begin this increase this weekend.
-This next couple weeks are jammed with check up appointments at the hospital.  Health for Aimee, energy for me, and patience for Caleb!