11.1.12 Neurodevelopmental

The kids and I met with the Neurodevelopmental clinic yesterday. Such a refreshing visit with a doctor who is willing to answer any questions about any area. He oversees Aimee's care at children's and makes sure we feel that every detail is being covered. I typically bring in a list of concerns or wonderings that he addresses and then he reviews with us all her recent issues. He was very pleased with how happy and animated Aimee has become. Definitely found our new therapy intriguing.

At the end of the day, we only ended up with a few areas to make adjustments to for now. First, we started Aimee on a reflux medication to adjust the pH of her stomach acid. We hope this will reduce her vomiting and allow us to get her adequate nutrition again. Second, we talked about using suppositories to help keep her closer to regular. Only going every 2 weeks makes for some sad days. We are considering doing this in addition to the laxative medication she already taking. Lastly, we calculated what amount of fluids Aimee needs when running a fever, so that we have a goal to work towards. She has been sick so much recently. It seems like about half of the time she is sick and we are fighting to keep her hydrated. It will help to know what fluid volume is necessary during those times. Of course, actually reaching that illusive number is another tale altogether.

Another interesting item we discussed was the shape of Aimee's skull. As she grows, the left side of her face is becoming more and more pronounced. He showed me how her head isn't circular overall. Parts of her brain have grown or not grown and the plates have come together sooner in some spots. This has caused her one ear to be more forward, one side of the back of head to be more flat, and the left side of her face to be larger than the right.

We also reviewed the hip x-rays that were taken in January. I found it really interesting to see the differences made by not bearing weight. Her bones are not as strong and sturdy. The tops of the bones were also deformed in that they're straight instead of bent as is typical. Love actually learning how her body works, even the details I don't absolutely need to know. The little things that help me understand her better.