8.10.10



Sorry for the delay in updating post surgery. We took Aimee in last Monday to have the PEG or G tube placed with the GI and surgery departments. The surgery itself was quite short, about 30 minutes and she was in the recovery room for about 2 hours. We finally got her room number and went up to sit in the empty room and wait. She was wheeled up in a hospital crib to her room. I very nervously picked her up off the bed. She was asleep and I knew she was on pain medication, but I still didn't want to aggravate anything. I wonder how many times in her life I will have to relearn how to hold her! At least life isn't boring!
Well we had an uneventful, but stressful night. Aimee did not wake up and had a fever. Also, her blood pressure dropped down several times. Typically they come check the patients vitals every 4 hours, but they had her on a half an hour rotation and had the different specialists coming in to give us their opinion through the night. They also did several blood tests to check for any infections. Finally, at 8:55am the following morning, Aimee woke up. She was only awake for about 10 minutes to start, but oh my were we happy for those minutes! The anesthesia that was supposed to wear off in about a 10 minute time frame ended up taking about 20 hours.
We stayed an extra night at the hospital so that they could monitor Aimee and we could transition her from the IV to tube feeding. We were released on Wednesday afternoon. Aimee seems to be recovering really well and we have been able to increase the speed of her feedings quite a bit.
We have this week off from appointments, at least the ones at Children's, which is a nice break. Next week we will be going in for her post-op appointment, a nutrition consultation and an adolescent medicine appointment.

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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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