8.17.10

Aimee and I were at Children's yesterday for two post-op appointments. The first one was with the clinical nutritionist. I was able to convince her to allow me to replace Aimee's evening snack that is currently formula with blended real food. She said, however, that we will be required to buy a certain industrial type blender in order to do so. I just got off of the phone with our insurance company to find out if they help cover it, unfortunately they don't. Shoot! Thankfully God provides for our every need, including a 600 dollar blender!

Speaking of provision, we have been so amazed the past few weeks at the love and blessings we have received from everyone. Love has come in so many forms-Food, clothes, money, dinners and just plain encouragement. Thank you for loving us! Really, really it means so much to us and has been helping us through a challenging financial and emotional season.

We did, however, find out that we were denied for SSI this week, so that is a disappointing. Apparently Ed makes a couple hundred dollars too much monthly to qualify. At least we know now.

We also met yesterday with the GI department to check out the surgery site. Aimee is recovering really well. It appears like the site is healing nicely. We can now bath her and let her lay on her tummy again.

Tomorrow Aimee and I will be meeting with Adolescent Medicine. We'll update at the end of the week with results from that appointment. We will be following up with the nutritionist in about 5 weeks to hopefully add an additional meal of blended foods. Also, at the beginning of November, we will have a follow up procedure with the GI department to replace this temporary G tube with the permanent one. This will be a simple surgery that will not require an overnight stay (as long as she wakes up!).