12.15

So...Ed just got off the phone with Dr Walker, the Neurodevelopmental specialist at Seattle Children's. All of our test results came back normal. We had already heard the results of the tests for cholesterol levels and a specific disorder a couple weeks ago, but these results were for protein tests and chromosome/genetic tests.
Not to sure what to think about this. It is a good thing, but also leaves us back with no leads and no answers. We will be meeting with the Opthamologist on Thursday to have her nervous system checked through eye exams. This may give us some answers or may be normal. We will be back in Dr Walker's office on January 6th to discuss where she is at currently and if there is anymore testing that should be done.
In the mean time we are continuing to work with the state and school district therapists to help Aimee meet the goals of grasping objects, sitting up and moving about the house.
Thank you for your continued prayers for our family!
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5 comments:

  1. AnonymousDecember 15, 2009 at 4:58 PM

    I will be praying for you and your family.... All my love as you wait for whats happening... not knowing is not easy... Blessings Kiri xx

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  2. AnonymousDecember 15, 2009 at 7:19 PM

    Oh my goodness, I had no idea this was going on. You and your sweet family are such a treasure from God. My prayers this night will be directed towards real and intense healing in your sweet girl.

    We have an amazing and faithful God and I am sure of his healing. During my 5th month of pregnancy with Isaac, they called me in for several follow up ultrasounds after the anatomy ultra sound because he had bilateral cysts in his brain (fluid filled pockets) and they could not find an essential structure of his heart. We were given an uncertain chance of survival upon birth. After intense prayer our faithful father give us a healthy baby boy with all the heart pieces and a normal brain. I am confident that this is what God will do for Amiee, except for the boy part of course ;)Make that healthy baby girl!

    Love, Christie O

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  3. BethanyDecember 16, 2009 at 11:08 AM

    I love you Rosa. And I love Aimee. I will keep talking to the Father about all of this.

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  4. AnonymousDecember 16, 2009 at 12:37 PM

    Oh Ed and Rosa,
    Sometimes it does seem like the Lord gives us more than we can bear. And this is one of those times. But the Lord can help you find the answers you need and keep your love for each other and your beautiful daughter strong. It just takes a lot of work and faith. Take care of each other's you. It is so importyant. WE love and pray for you, Robert and Cathy DeVoe

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  5. UnknownJanuary 1, 2010 at 8:50 PM

    Rosa I can not imagine the things you are going through. I pray that u remain strong and that God will breathe strength to you at night while you sleep, I also pray your marriage would remain strong through this! Love you guys. Alicia

    ReplyDelete

We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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