Lauren, Aimee and I spent 3 2/1 hours at the Ophthalmology dept yesterday. 3 different doctors took a look at her eyes, trying all kinds of techniques. After the examinations, we were told that her eyes, optic nerve, blood vessels, ect all appear to be functioning normally. It seems that her eyes are taking in information and bringing to the brain, but it isn't being processed there. This seems to be directly related to the delayed myelination. The doctor said there are 10 current patients of childrens with the same symptoms, same development issues.
January 6th we will be discussing these results with the neurodevelopmental doctor. I also plan on asking him about setting up a support group with these other parents.
January 7th we will be taking her back to Ophthalmology to have a few tests performed which will measure her brain wave responses to visual imagery.
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The support group is such a good idea Rosa. I'm sure it will be comforting to talk to other moms and dads working through these symptoms in their precious little ones' lives. I'm so glad that they didn't find any problem with Aimee's eyes and will continue to pray for clarity on the cause of the delayed myelination.
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Bethany
You are amazing Rosa
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