Aimee is here with us in body, but her presence is already being missed. It is Thursday night and I haven’t seen her awake since a short 15 minute period on Monday morning. Since then she has become less and less responsive. She has also had more pain and agitation requiring more management.
It has been a slow walking forward with her. Yet each day there are changes. We connect with the hospice nurse multiple times a day. Most days we have a home visit with her and a fellow from Children’s. We’re trying to help Aimee be comfortable as much as we can. It is a hard place for us to be. We don’t feel that we will ever be ready to say goodbye, but also wishing for her sake that she will be able to complete her journey soon.
One major heart balm has been hearing memories, seeing pictures/videos, and learning of how Aimee has impacted those around her. I love that she has been able to hear so many different loved voices and messages around her daily. She is loved. Lovely and loved and worth every single beautifully heartbreaking moment. What a journey this dear girl has been on throughout her life. What a precious gift of starlight that she has shined upon us all.
May God bless Sweet Aimee,Peace be with your family. My prayers are always for your wonderful family.Pop Pop DeVoe care for you all very much, take care of each other.
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