7.12.23 Bones

Spending the day down at the hospital. We had a dexa scan to check her bone density and are currently in infusion clinic for for her zaledronic acid bone infusion. Wish all the areas of the hospital care were as supportive as this one. It is the only place we come that asks if we are getting the resources we need, if we need supplies, is completely accommodating, ect. This is the clinic we are technically supposed to come to weekly for weight, blood draws, and dressing changes. 
Even with how supportive they are, we were both so anxious bringing her here, difficulty sleeping, and flashbacks. Just keep breathing and get her back home where she belongs. 

The younger 4 kids and I are finishing up our school year this week. We did a modified schedule of 3 weeks on and 1 week off all year, which left us with another 3 week term during the summer. It was a wonderful schedule and we all voted unanimously to continue it next year. Looking forward to a long pause with hopefully lots of family time! Aimee is still almost entirely in her bed, but with the wonderful back access to the house and the new patio our world has opened back to the outdoors. We even got to sit outside and see the neighbors’ fireworks this year. I very much wish that Aimee was outside with us, but it has been life giving for the rest of us to be in the fresh air!