4.10.23 Fighter

I must tell you about our girl Aimee. She is a fighter. She is adaptable, flexible, calm. She handles pain like no other, she rolls with the punches her body sends her. And we are on this ride with her as long as she wants to be. I am so, so honored that she wants to be here with us despite it all. 

Nothing much has changed positive or negative. Her intestines are still just barely functioning. A few hand squeezes, but she was mostly out if it today, so I started back some more pain medication tonight hoping that she will rest well and maybe be able to interact tomorrow. I talked with hospice and her GI specialist. Everyone is amazed at Aimee’s resilience.

We are on a bit of a plateau it seems. I will update when there is anything to share. For now, there isn’t much that we can do, except offer her comfort medications and extra fluids. We’ve already taken food and breathing out of the equation with the IV nutrition and the ventilator. Aimee gets to decide from here. This is her race and we have no idea how far she will decide to go. 

I am amazed at how well she has done on this path she has been given. She lives with joy and grace in an extremely difficult body with such a limitation on how much we can understand. I am beyond grateful to be her mom. We are so grateful she is in our family. Our girl.