We did get EEG results and there were no seizures during the 2 hour test. Thankful to rule that out as the cause of her fatigue.
11.3.18 Test Results
Following Aimee’s Pulmonary Sleep Clinic visit earlier this week, we had labs done to re-check Carbon Dioxide levels and iron levels. Iron supplements have kicked in and her stored iron is now back to a healthy level. Very unfortunately her carbon dioxide came back significantly higher... the highest it has ever been despite the increase to the backup rate on her bipap machine in September. This is really concerning to me and may be the cause of her general low energy levels. I have not yet been able to discuss the results with her Pulmonologist.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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I've been following this blog for awhile...years, actually. Just wondering and HOPING everything is okay...haven't seen an update. Hugs to you and your sweet family!
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