1.11.18 Done!

After over 6 weeks, we are officially done with the wound VAC therapy as of today! The wound has filled in nearly all the way and will now just have a dressing change done daily at home by us. And she can finally have a shower again!! Yippee!! :) We will have to continue to watch out for extra granulation tissue and use silver nitrate to burn that back so that the skin can grow. We are hopeful and excited to be moving to this last step towards healing. She will not have to go back into the orthopedics clinic until 2 weeks from now to check over the wound. Then in February will be the first extension of the growth rods. 

-Brenda, ortho nurse practitioner, has been a huge blessing doing weekly wound VAC changes at our home and weekly changes in clinic. Elliot and Walter were there today too, but not pictured ;)- 

In other news, we spent a couple hours in clinic on Tuesday with a PT and the wheelchair company working on her chair. The bigger she grows, the more she twists, the more challenging it is to get the chair to fit her correctly. We’ve been having more pressure spot issues, which could turn into pressure sores when she gets back to typical days spent in her chair. With a new back, seat, and headrest, we are hopeful to see a reduction of these spots and better support. 

Overall, Aimee is making progress. We’ve been having a lot of communication with GI from home to make different tweaks to her routines and meds. It is all so complicated now, but worth it, as she is less distressed and starting to have periods of alertness. We’re kind of figuring out her new routine while she is at home in bed. As she gets more comfortable, we will start to have her spend more time in her chair and start moving towards returning to school. An intimidating, uncomfortable step to consider, but hopefully Aimee will be able to participate in things she enjoys again soon.