7.13.17 Update

Two Fridays ago Aimee met with the dentist down at UW. It actually went really well. We were able to put off any major meddling for a future date with everything else she has coming up. She even was able to get a few of her teeth polished for the first time. :) 

Last Monday night we spent at Overlake Medical Center for a sleep study. She hadn't had one in 3 years and really needed it done before the anesthesia appt in preparation for the spine surgery. I don't have the official results yet, but Aimee seemed to sleep well during the study. I wish I could say the same for myself. ;) 

Aimee loved the 4th of July. Between the noise of the fireworks and sitting next to a warm fire, she was in her element. I believe the fire was actually her favorite. She was watching it out of the side of her eye as it danced around. Really kind of perfect in the dusk light for her vision. 

Last Wednesday we had another PT appointment that Aimee loved. She laughed and laughed through the different movements. The therapist put her in all kinds of funny positions (up-side-down!!) and it was apparently hilarious. We'll have one more PT visit at Providence to figure out our best home routine and probably come back every year or so to get this updated as she grows and changes.

This Monday, Aimee went in for a renal ultrasound in preparation for this coming Tuesday's appt with the Reconstructive Pelvic Medicine team to discuss surgery options. The ultrasound was fine, as far as we know. We really don't get results until we meet with the doctors. The only real comment that they made was on how much Aimee has grown in last 6 months.

This week has been really emotional for Aimee. She has had a couple of really uncomfortable, sad days. We evaluate everything when she is that way, all jerky and upset. It can be really difficult in Aimee to distinguish between pain, allergies, sickness, seizures, crankiness, infections, intestinal distress, and tiredness. There are always possibilities that nag in the back of my mind. Did she break a bone? Does she have abdominal pain? Is it another UTI? Is she just over tired? Were those jerky movements a seizure? Those times that we discuss and rediscuss with every hour that passes. Suddenly, a day or two in, she will start to smile. We scratch our heads, shrug our shoulders, and move on to the next phase. 

Last weekend we got to spend a day at the zoo with our DeVoe family. First time we have been back since Aimee's 3rd birthday. It was really fun to have the boys see real animals up close. Aimee  cooperated with no issues and we even found a decent bathroom bench on which to lay her down. Success!