1.19.17 It's Looming

Here they come looming ahead, the dread IEP and the annual DDA assessment. 

So I thought. So I still feel about the dread IEP. However, as of 11am this morning, I have faced down the annual DDA assessment. This was done in our home by the same evaluator as last year. It went so well! The assessment determines how many hours of personal care Aimee will receive per month in the coming year, as well as, how many waiver respite hours she will receive. The whole process was very smooth this time. Aimee received the same number of care hours and her waiver respite hours increased by 30%! So grateful!

In preperation for that dread IEP, we received the most recent therapy updates. It was ugly. On this progress report there was not a single positive word. Her 3rd IEP in this district is coming and there is not a goal written down that Aimee has made progress towards or realistically ever could. Most of the goals she really hasn't even met what was written as her baseline. "She has not made any significant progress on this goal" multiplied over and over. "Downgrade goal due to student's abilities" "Student at baseline". I am vacillating between a desire to tear up the idea of goals and frustration that there is not a single current therapist that believes in her. Wether from lack of experience with more severely disabled kids (seems likely) or from lack of interest, it does not appear that effort is being made. Is it really worth it all to send Aimee to school? It can't be. Could it be worth all of the drama, continual paperwork, blasé therapy, risks. No, it really can't be. Except, Aimee is worth it all and she enjoys school. So, IEP, I am preparing my battle face for you.

We've lived through a flu and had a few other appointments for Aimee since my last post. The only item of note was with her dentist. She had local anesthesia to have a tooth pulled and they are trying to determine if they need to surgically remove more under general anesthesia. We were also able to  determine the cause of the intermittent bleeding in Aimee's mouth. It appears that due to her significant underbite and aggressive grinding, she is causing the bleeding herself by grating the lower teeth on the upper gumlime. Yugh. Don't do that Aimee.

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