Ugh! No!
My two opposing exclamations on my mind.
I am filled with excitement after yesterday spending time ordering a new customized wheelchair for Aimee. As she has grown and become more set in her ways, her wonderful wheels have become less supportive. Her needs have changed and we are looking for a chair that will allow her to interact with her siblings and classmates. We were thrilled to spend time going over every single piece of the new chair designed for her needs. We discussed in detail with the equipment provider and the physical therapist every inch from back cushion, side wedges, rib support, and head stability to wheels, equipment storage, washability, and straps. Praying for insurance to cover this amazing new chair. Yippee! Zippee! 
My second exclamation is a sinking realization that the nighttime apneas are creeping back. Each night we are seeing more dramatic lows and they are beginning to increase in number. The o2 worked so wonderfully well... But the change seems to be slipping away. Ugh! No!!!
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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