Although this is good news that there is nothing to fix , it is bad news... There is nothing to fix. I won't actually talk with a doctor about it until next Tuesday, but I am quite certain they will say it is another "wiring issue" that they don't yet understand. Jesus help me.
Aimee is doing so well in some areas. She is more aware, responsive, and awake then ever. Yet, she is having more issues than ever with everything from cues to breath, to pee, to regulate temp, to have BM, to regulate blood pressure, and to relax muscles.
One day, one issue at a time.
There is this pretty sunshine to get us through though.
I love Aimee.
I pray the the gracious healing hand of God would touch this precious girl's life and heal her of all diseases.
ReplyDeleteJesus name I pray
I just love that smile! Have you asked a neurologist about dystonia? When we were just at children's Betty's neurologist said a lot more kids have it and it's effecting their airways. We use phenobarbital and diazepam to help control Betty's. Praying for answers, protection and love to you all.
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