Wednesday Aimee and I drove down to Puyallup to meet with the therapists at Good Samaritan Children's Therapy. We were to have elbow braces and hand mits made. They had told me over the phone that since I was coming so far they would be able to schedule all the appointments into the same day. Sadly when we got there, they said that we would have to come back at least one more time. Bummer. They took all her measurements and let me pick out colors, which seemed a little silly to drive 2 1/2 hours for honestly!
The splints and mits are for use during therapy exercises. We have been putting her in a simulated crawl position to build up strength in her shoulders, elbows and wrists. She is getting so big now though that, without some supports or multiple people, there is no way do the exercises. Her hand motion is already restricted from lack of use, so I am hoping that by doing more weight bearing exercises we will be able to keep the motion she has. The other option is putting braces on her hands and arms throughout the day. It's hard to know how much she'll use her hands for moving around... is it worth it to put her through more for motions she may never use?
This morning Aimee and I met with the Pulmonary clinic in Seattle for a sleep consultation. We discussed Aimee's breathing patterns and her sleep habits. They were concerned enough to get us a priority sleep study (or Polysomnography :) fun words). Apparently they are booking out in February right now, but were concerned enough about Aimee to get us a study scheduled for 3 weeks out. Should be interesting to see what comes of it. Since she has such low muscle tone, she is in a high risk category for breathing problems. If she is getting poor sleep quality due to lack of oxygen and if we are able to fix the problem, it could even decrease some of the other issues she is having. As they were explaining to me, if your brain and heart don't get to completely recoup then they wear out faster, which can cause seizures, high blood pressure, poor development, ect.
It's all very interesting!
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