-Finished our first run together!-We met with Feeding Therapy in Seattle on Monday. Aimee played a convincing opossum act through the appointment, but I was still able to get a few lip and jaw exercises to start practicing with her at home. They are not quite ready to do another swallow study on her yet, but would like to see her 1-2 per month to work on increasing her tongue and jaw movements.
Monday I noticed quite a bit of blood around Aimee's hearing aid, so I took her in to see the Naturopath on Tuesday morning. She had a sad cold last weekend, which apparently had caused an ear infection. Unfortunately, the pressure built up too much and caused her ear drum to rip. So she is on antibiotics to clear up the ear infection and we'll go back on April 26th to make sure the drum is healing.
Wednesday the local Physical Therapist joined in on Aimee's Occupational Therapy at home. She came to evaluate Aimee because of the concern of her spine curving. She said that Aimee may need to have a brace at some point to prevent future surgery, but for now we will just do our best to keep her spine straight with positioning and exercise. She also recommended several other pieces of equipment for us to purchase (oh goodie! haha). We will review them all with the OT next week and see what actually makes sense for Aimee at this time.
-Trying (or not) to sleep during EEG-Thursday Aimee had her first EEG to determine if her episodes are seizures or not. They wanted to have a portion of it with her awake and a portion asleep. I wasn't at all concerned about the sleeping portion, I figured after the stuck 29 electrodes to her, she would be out like that...well, what do I know!?! She stayed awake for the whole thing! Oops. They had done a flashing light in her face at the beginning and she was so excited by it that she spent the rest of the time smiling and kicking her legs. It sounds like we may have to repeat the test, but we'll know more in about a week.
Ed is going to have his tonsils taken out on Monday, which is going to be a bit more intensive than we had originally planned. They advised him to take 1-2 weeks off from work...not the 1-2 days that we were thinking. I'm a little worried about loosing my helper for that long of a time and gaining a new patient! The goal of this though is to get him good, quality sleep. It isn't guaranteed to work, but we are very hopeful that it will at least cause improvement.
No comments:
Post a Comment
We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
Please be aware that I do moderate comments, so it will not appear immediately. If you have any trouble commenting, feel free to email us your thoughts to edr2005@gmail.com.