10.26.10

Please be praying for us over these next few weeks regarding the equipment orders that we have placed already and will be placing soon. We have Aimee's hearing aids, but do not have funds to pay for them. Thankfully, we also do not yet have a bill. :) We have ordered her a bath chair, which we have been informed that the insurance will now either cover completely or not at all. Tomorrow, we will be meeting with the wheelchair company to discuss options. We are pressing to place an order by the end of the year. Aimee is within a few inches of outgrowing her stroller's capacities and at the rate she has been growing will be out by her 2nd birthday. We would like to order now, hoping that the insurance will cover more of the cost, as we have met our stop loss limit for the year. Pray for favor and a timeliness with the insurance company. We should have an idea after tomorrow of the time line and hopefully an approximate out-of-pocket cost.

10.21.10

Aimee got her new hearing aids on Tuesday, when we met with the Audiologist. As you can see, they are pink and sparkly. Girlie, for a cute girlie. She seems to really like them. She has been telling me stories all day long. None that I understand... I'm thinking they might be in gaelic. We were able to get a set that were a bit cheaper (a bit like only $2,000, instead of $3,000!) and they came with a full warranty for 3 years, including a one time replacement. Depending on how fast her ears grow, we will get new ear molds made every 4-6 months (about $200). Normally they would test her hearing that often as well, however, as we have to put her under anesthesia, they are allowing us to go for a year in between tests.
Good news this week-I was able to get through to all the departments and companies that I have been struggling to connect with for the past several weeks. We ordered Aimee's bath chair (yeah, she will be cleaned more often), set up her next surgery appointments and made an appointment for a wheel chair fitting. Ugh, what a relief to finally get through!

10.14.10

I have been somewhat remiss the past weeks in updating the blog. This has been an unusual time for us. Ed has been working a lot of hours between his day job and side jobs. Aimee and I have been waiting-waiting for test results and return phone calls. We are trying to get a few pieces of equipment ordered through difference companies and trying to schedule surgery. It seems that everyone is out finding costumes for Halloween or something! I have never had so much trouble communicating with the hospital before!
I have started making 3 of Aimee's 4 daily meals and think that I have mastered the art of getting the consistency that the pumping machine will accept. Aimee's digestive system is already showing improvement. Still working on perfecting the nutrient aspects though.
We have also borrowed a few pieces of equipment from the therapist to try at home. I fixed some broken straps on the stander this week and it is in operation. Aimee and I spent yesterday around town finding objects to decorate her 'little room'. That was a fun project. The items are as different in texture, shape and sound as I could find. She hasn't had a lot of time to get acquainted yet, but I think she'll really enjoy it.
Speaking of equipment-where am I supposed to store all of this stuff?