12.3

Yesterday we had 2 therapists and a resource coordinator come to visit. They will be coming over about 3 times a month to work with Aimee. They were all very helpful and full of good ideas to help stimulate her. That was the good part. The bad part was that they made me sit down and make goals. It doesn't sound that bad, but I had to think about where I am hoping Aimee will be in 6 months and in a year.
We set 3 main goals for Aimee to be able to do in the next year:
-bring items to her mouth by herself (this is probably a 6 month goal)
-sit up unassisted
-explore the house
I actually asked for crawling, but they said that may not be an option. We will just work toward her being able to move about in some fashion. We then set tiny little goals to work towards these larger goals. It was the most emotionally challenging appointment I have done yet. I've been avoiding asking myself the question of where she will be at in a year. Will she be able to sit up by her 1st birthday? Will she be able to walk by her 2nd? If we take things day by day it seems very good. Aimee is making progress in little areas. As Ed and I discussed it last night...we finally have to face the fact that things are going to be different for us in major ways...maybe for her whole life...

Please pray for us to know the right ways to love and encourage Aimee towards reaching the small goals. Also, please pray for God's provision. We are in the process of applying for financial aid through the hospital for the medical bills and will also be applying for SSI to help pay for special equipment.

Thank you for your support and love to us during this last few months. We have been so blessed by our lovely family and friends.