Excuse the long delay on updating all of you on Aimee's life. This past couple of weeks have included several appointments and the start of a new school year.
A bit of a rocky start to 2nd grade with a few bad days in already due to a severe 8 minute apnea just prior to school, some seizures, and a missed meal. Hopefully next week we will get things right and consistent again for Aimee's sake.
Yoda has started coming to appointments with us, which so far has gone well.
No changes with Aimee's sleep clinic appointment, though we are considering requesting sleep medication for her. She has a difficult time keeping track of night and day recently, which means midnight dancing and afternoon snoozing. For Aimee. Not me.
We met with Aimee's Ortho doctor who originally corrected her club feet. Due to Aimee's surgeries and me not being convinced they were doing anything, we haven't been using Aimee's AFO braces. And... I was wrong. She has lost 15 degrees of movement. So back to bracing, though only 12 hours a day.
At her GI clinic appointment it was decided that it is time try using an irrigation enima system as we are having a difficult time still. This is basically multiple saline colon flushes. It might work.
And, as we speak, I am sitting at Sea-Tac airport waiting to board a flight back for the Hillsdale College Homecoming. This is a big deal. Praying for a peaceful, smooth weekend for Ed with the kids. He will have help, but it is a heavy load for him to carry. On my way!
