Caleb capturing everyday life.
Kids ready to cheer pregame.
Aimee and I celebrating in style.
1.18.15 Knee Deep
Slogging through the mess of paperwork, meetings, doctors notes, and care plans to get Aimee transferred to her new school district. I don't like it. The district actually is great. The people are all friendly and welcoming to Aimee. I just really dislike to continual feeling of conflict that being an advocate requires. Yes, she'll need a one-on-one aid. No, I refuse to put her on a bus without one. Yes, I'll train them. Yes, I'll make a care plan for each possibility and get doctor signatures for every scenario. No, that won't be adequate. No, I don't feel comfortable having that therapist work with her. No, I won't leave her until I feel comfortable.
It feels icky. There are many moments during this process when I have reconsidered home school. Unfortunately, nearly every time has been for my own selfish desire to run away from all these particulars. But, this
face... 
...so I continue.
In an unfortunate turn, this last few days, Aimee has recessed with her sleep oxygen desats. We have had several nerve wracking lows that her new machine is not preventing. We don't understand why, but for now we are rousing her or doing some chest compressions to get her breathing. Maybe it is time to see what is happening in her brain with a sedated MRI.
Aimee received her nightwear braces and has been faithfully wearing them. In a couple weeks we'll pick up her custom daytime braces and she'll be ready for 24/7 duty. 
Imagine these cute little kicking feet with braces. Watch out toddlers! Aimee is about to be armed and dangerous.
Aimee is adjusting to our new home. She has had breakfast in bed many a morning with her brothers and has been out in the sunshine helping me with the sleeping garden.
In the thick of questions, of issues, of icky, there are seeds of gratefulness for every moment with this sunshine girl.
Subscribe to:
Posts (Atom)