7.27.10

Aimee and I were in the Radiology department yesterday for Upper GI imaging. Her anatomy is completely normal, which means there should be no problems performing Monday's surgery. It did appear that she refluxes the liquid that is put down by the NG tube up to her esophagus, which isn't a problem, but nice to know for during feedings.
Ed had a sleep study almost 2 weeks ago and will be going in Friday evening for a follow up consultation to discuss the results. We are really hoping to find a solution for him. For as long as he can remember he has not felt rested upon waking up, no matter how long he has slept. It makes it really difficult for him to stay awake/alert if he isn't really engaged or active.
Aimee's surgery is Monday at 1:15pm. Please be praying!

7.20.10

Welcome to the world URIAH!!!!
We are so excited for all of the fun cousin times to come!

Added to the upcoming schedule:

Aimee will be going in Monday, July 26th for upper GI imaging with radiology to make sure that all of her interior anatomy is normal prior to surgery. We will go in on Thursday, July 29th for a Pre-Op appointment with the Anesthesia clinic. Her surgery is currently scheduled for the following Monday, August 2nd. We should be able to leave the hospital by Tuesday evening, August 3rd. Follow up with begin on Monday, August 16th with a Post-Op appointment with the GI department. Approximately 3 months after the initial surgery, she will have a follow up surgery to place a final tube. 'Final' in the sense that she will not need any more surgeries. It will still have to be replaced every 3 months.

This will give a whole new set of appointments to attend to (oh joy!). There is some good news with it all though-I was told that there is a possibility, once we have installed the G tube, of being able to make her food again. It will be given through the tube, but at least she will be "eating" real food instead of that canned concoction. The nurse felt it was necessary to warn me that making the food is a lot of work. Haha! I'm pretty sure I already understand how much work it is to make baby food and that it is totally worth every second! So what if I have to run the processor for an extra minute and run it through a strainer. It is still only a possibility, however, and it will have to be approved by the nutritionist post procedure.

7.15.10

Exquisite News! Our Children's/UW financial aid application was approved through the end of this year!!!! Hip Hip Hooray!!! So thankful for all of your prayers. Also, if you are ever approached to donate to Children's, please consider doing so. If you have any doubts, just watch Aimee's laughing video again. :)

Aimee and I will be meeting with the GI department on Monday to discuss having the G tube put in. Hoping it will be soon and dreading it at the same time.

Our upcoming appointments (aside from weekly weigh in and therapy):
7.19 Naturopath-dietary analysis
7.19 Gastrointestinal-consultation
8.3 Audiology-temporary hearing aid fitting
8.11 Adolescent Medicine-review of most recent ultrasound and results of using steroid cream
8.23 Genetics-review most recent DNA testing results and discuss any further potentials
8.25 Naturopath-18 month check up
9.8 Anesthesia-prepare for hearing exam
9.8 Otolaryngology-check out ears in preperation for hearing exam
9.10 Baer Hearing Exam

7.11.10

Aimee laughing! She is definitely the happiest baby I know!