We are beginning to settle into a routine with Aimee's feedings this week. Aside from the digestive issues and the concerns over the exact amount of formula that she should be receiving, the process is going well. She is being weighed weekly on Mondays. At yesterday's weigh in she had lost over a pound from the week before, but it is hard to know if that is due to the digestive problems or the amount of food. We are giving it one more week before we request an increase.
We are scheduled to go in for a consultation with the GI department in 3 weeks to discuss having a G tube put in (the one directly into her stomach). Until that point, we are supposed to carry on as "normal".
Please keep praying for us. Specifically for peace. I (Rosa) have been having several nightmares about hospitals/doctors and am really struggling with losing control and say over Aimee's future. We want to trust God...but going through the process of doing so seems to be more difficult than obtaining the desire to do so.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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praying for you Rosa!
ReplyDeleteMyself and our church are continuing to pray.
ReplyDeleteWhat are the digestive issues going on, still the regularity issue? Are they having you check for residuals post feedings? This can give you a small clue of her tolerance of the formula. At least in the adult population this and digestion are used to gage tolerance of formula type.
It is sooooo hard sometimes to trust God, I struggle with that frequently myself as a type A planner ;) Haven't figured out the cure for this yet other then praying through the process of faith.
As always please contact me however, if you have a question, need to talk something out or simply need an advocate.
You as a parent have the most valuble say in the course of action taken with your children.
I want to do whatever I can to help you and your family,
Christie