Had to cancel all of our appointments for last week, because there was just too much beautiful snow! However, we were totally blown away to receive a used wheelchair from our new friends that have a gorgeous little special needs girl. This chair is going to help get us through the next several months until we are able to get one that fits Aimee's exact needs. It is a HUGE HUGE HUGE blessing!!!! We are so honored that God connected us with this sweet family. (Pictures coming soon!)
Yesterday, Aimee and I spent the day down in Seattle for multiple appointments. We met with Genetics, which was rather uninteresting. The doctor is referring us to meet with a Genetic Neurologist for a second opinion. We have already taken Aimee through the first and second tier of genetics testing with no telling results. There are more tests, but nothing that matches Aimee's situation. They are essentially admitting to having no more bright ideas.
We also met with the GI clinic and the Nutrition clinic. We had Aimee's feeding button changed out, which we will do from home every 3 months from now on. They were really happy with Aimee's growth over the last few months and even seemed to be a bit proud that I was making her food. What a change!
The really exciting thing that happened yesterday is that we were finally able to get a referral to Feeding Therapy! At this point, I have no idea what this will look like, but it is a step in the right direction. It may start with another swallow study and then probably add an additional weekly appointment. Should have more information on this in the coming weeks. HOORAY!!!
Don't forget to vote, vote, vote! Every vote in the cutie pie contest goes to support Aimee...every vote makes a difference for us! Please check out the 63 too cute faces at erincoxphoto.com/blog. They are guaranteed to brighten your day!
