This has been one sick week in the DeVoe house. Kind of nice to get us all out of the way at once- like a family activity. Unfortunately, Aimee is still pretty phlegmy (Spell check says this is not a word. It should be a word.). It makes me a little nervous for her to be coughing and having so many secretions. I wish I had some way to help her clear out and to keep her from aspirating anything. If we get to tomorrow and she isn't clearing up, I may have to take her in...we'll see.
Had to cancel most everything this week because of being sick, but we did make it down to her Audiology appointment today to get fitted for new hearing aid molds. We decided to stick with the cute pink ones with glitter in them, but this time we are adding little silver stars! I know what you're thinking ,overkill, but the stars were so perfect for her...I couldn't pass them up! :)
While we were there today, they checked out her ears and noted that she may have an ear infection beginning to develop. Kind of neat that we went in and found out, because she has no way to tell me that her ears are hurting her.
Anyone have any natural solutions for these minor issues? I've been hearing about oregano oil a lot lately for colds/coughs, so I may be trying that. It just seems silly to take her in to the naturopath one week before her two year check up.
Baby Photo Contest Fundraiser
We are so blessed to have been chosen by
Erin Cox Photography
to be the recipient of a photo fundraiser.
It is free to enter a current photo of your baby 0-3 by emailing erin@erincoxphoto.com before February 28th. Then from February 28th-March 19th have your friends and family vote for your photo to win.
Each vote will cost $1 and all the money goes to Aimee!
Oh yeah, and if your baby wins, they will get a free photo session and a $50 print credit ($150 value)!
She also has a prize if you are an out of town winner.
Check out her blog for all the details at http://erincoxphoto.com/blog/.
Need some extra incentive? Check out the great photos that she just took of Aimee a couple of weeks ago.
http://erincoxphoto.com/blog/?p=2187
Amazing!
Erin Cox Photography
to be the recipient of a photo fundraiser.
It is free to enter a current photo of your baby 0-3 by emailing erin@erincoxphoto.com before February 28th. Then from February 28th-March 19th have your friends and family vote for your photo to win.
Each vote will cost $1 and all the money goes to Aimee!
Oh yeah, and if your baby wins, they will get a free photo session and a $50 print credit ($150 value)!
She also has a prize if you are an out of town winner.
Check out her blog for all the details at http://erincoxphoto.com/blog/.
Need some extra incentive? Check out the great photos that she just took of Aimee a couple of weeks ago.
http://erincoxphoto.com/blog/?p=2187
Amazing!
2.10.11
Had a great set of therapy appointments this week. Yesterday, Aimee worked harder than I have seen her work in months. She really was trying to hold up her head, even while in a simulated crawl position. Today, we saw the TVI again and she brought a little keyboard for us to borrow. Aimee lit up when she figured out how to hit the keys. So sweet!
I attached a video at the bottom of this post from yesterday. She was in such a good mood all day long. No nap and laughed through our whole evening walk/run. She has a great little sense of humor!
If you would like to get Aimee a little something for her birthday (2.26), we would love to have some items for her addition to her activity room. Below is a list of suggestions:
-Bubble wrap
-Textured material to pin up on the walls
-Plastic plates (2)
-Plastic mug with handle
-Buttons of various sizes
-Plastic mold from a chocolate box (the part that holds the chocolates)
-A spring
-Pot cleaner or sponge
-Bunch of straws (20)
-Funnel
-Set of spoons with holes on the end (like measuring spoons)
-Net bag with hazelnuts (or other nuts in shell)
-Rubber gloves
-Tambourine
-Fragrant dried herbs or flowers (ie lavender)
I attached a video at the bottom of this post from yesterday. She was in such a good mood all day long. No nap and laughed through our whole evening walk/run. She has a great little sense of humor!
If you would like to get Aimee a little something for her birthday (2.26), we would love to have some items for her addition to her activity room. Below is a list of suggestions:
-Bubble wrap
-Textured material to pin up on the walls
-Plastic plates (2)
-Plastic mug with handle
-Buttons of various sizes
-Plastic mold from a chocolate box (the part that holds the chocolates)
-A spring
-Pot cleaner or sponge
-Bunch of straws (20)
-Funnel
-Set of spoons with holes on the end (like measuring spoons)
-Net bag with hazelnuts (or other nuts in shell)
-Rubber gloves
-Tambourine
-Fragrant dried herbs or flowers (ie lavender)
2.4.11
-Ed building an addition to Aimee's activity room-
We met with the TVI (teacher of the visually impaired) yesterday for the first time. Very interesting! She had several suggestions, but was overall pleased with how we are already working with Aimee. She provided us quite a bit of reading material, some on introducing the braille system, which we are unsure at this point if we will be using. She was particularly concerned that we did not yet have a fully supportive seating system for Aimee (a wheelchair). Aside from the mobility, she was primarily concerned about the support. She said that asking Aimee to hold herself properly, keep her eyes open and take in visual input is like asking me to eat lunch, make a sandwich and walk a tightrope at the same time. It is just too much to do at once. In order to allow her to use the vision that she has to it's complete potential, she needs to be properly supported. Nice to know, but it doesn't really help me get her a chair :). She will be visiting us once a month.
-Talking with Grandma Starla-
I am in the process of applying to attend a conference at the Tacoma Convention Center in May that will have sessions specific to children with multiple disabilities, especially vision and hearing loss. The school district really wants me to start attending these types of conferences and day sessions. So far, they aren't that helpful for us specifically, but I am still hopeful.
We have been having so much trouble lately with our home care supply company. Of course, you all kn
ow about the difficulty with the bath chair and then the wheel chair. Now the company that provides our feeding supplies is causing issues! After a 2 week process of trying to get supplies (the same ones that I order every month, to the same address), we still have received nothing. I am hoping to find a box on my porch when I get home, cause we are now completely out of feeding supplies! It should be a 48 hour turn around time. Oh my!-All bundled and ready to run with Mommy and Daddy-
1.30.11
Wow, we are a bit behind on updating. The last month has been quiet on our front as far as appointments and changes for Aimee. We are continuing with the weekly occupational therapy and chiropractic. We have been seeing some improvements, but progress is really slow. Thank you to everyone who has been supporting us through this time. You have helped us to stay encouraged and to focus on the most important part-loving Aimee.
This Wednesday we are having a Teacher of the Visually Impaired (TVI) come over for the first time along with the therapist. If she feels that she can help us in any way, she will come to our house once a month.
We have been delayed yet again in the wheelchair process and will begin again in March. PLEASE pray that this time it will go quickly and smoothly.
Up and Coming:
February
2 year check up
Genetics
GI
Nutrition
2nd birthday
March
Opthalmology
Durable Equipment (wheelchair consultation)
Otolaryngology
Audiology
In case you missed it, below is the link to a Aimee's 2 year pictures taken this week:
{Aimee - 2 years} - Child Photographer | Skagit County, WA
This Wednesday we are having a Teacher of the Visually Impaired (TVI) come over for the first time along with the therapist. If she feels that she can help us in any way, she will come to our house once a month.
We have been delayed yet again in the wheelchair process and will begin again in March. PLEASE pray that this time it will go quickly and smoothly.
Up and Coming:
February
2 year check up
Genetics
GI
Nutrition
2nd birthday
March
Opthalmology
Durable Equipment (wheelchair consultation)
Otolaryngology
Audiology
In case you missed it, below is the link to a Aimee's 2 year pictures taken this week:
{Aimee - 2 years} - Child Photographer | Skagit County, WA
1.21.11
I promise to update soon with what is going on in Aimee's world, but for today I wanted to catch you up on some videos of her little life. Enjoy!
-A Pat on the Back for Daddy-
December, 2010
-Good Morning Sunshine-
January 2011
-The Costco Noise-
January 2011
-Playroom Fun-
January 2011
-A Pat on the Back for Daddy-
December, 2010
-Good Morning Sunshine-
January 2011
-The Costco Noise-
January 2011
-Playroom Fun-
January 2011
1.4.11
-Aimee opening presents from Nana and Papa-Happy New Year!
What a memorable Christmas and New Year we just had! Unfortunately, Aimee came down with the stomach flu just after the Christmas Eve Service at church. We settled in for an unexpected and very quiet Christmas weekend. We were disapointed to not make it to either family gathering. HOWEVER, we were completely blown out of the water by our family, who made huge Christmas sacrifices and came together to show us their support. We were and are still astounded by the love expressed. We are incredibly blessed.
For our Christmas we decided to let Aimee have her very first night all by herself at her Nana and Papa’s house. Ed and I had to go all by our lonely little selves to Port Townsend for New Year’s Eve night. While we missed our cutie, we really enjoyed the time alone together. Much needed!
We are now beyond the holidays, so it is back to the grind with appointments. Tomorrow we begin therapy again and are in the process of applying for a teacher of the visually impaired to come with the therapist once a month.
We are still at twice at week with the chiropractor, typically Tuesdays and Fridays. It is really hard to tell how much of difference this is making at this point. She is never able to hold herself in correct posture, so she is continually misaligned.
Thursday, I am taking Aimee to the dentist for the first time. I’m sure she will enjoy sitting in the chair all by herself, just hope she doesn’t bite his fingers!
Subscribe to:
Posts (Atom)