Appt tomorrow (14th) with Therapist

Picture of our little Husky!
We have a therapist from Birth to 3 (state run program thru the school district) coming over to our house tomorrow afternoon. Please pray that the true situation would be evident.

At Gabe & Lauren's wedding September 5th.

Coming Appointments

We have an appointment next Wednesday with the Birth to 3 therapists at our home and an appointment with the Neurodevelopmental Clinic on the 21st at Children's Hospital.

Keep praying for a miracle!

Most recent family photo (courtesy of my cousin)...aren't we beautiful!

CranioFacial Clinic

This morning we had an appointment with the Craniofacial Clinic. Aimee's skull size is very small, however, it is not due to a premature bonding of the sutures of her skull (which is what we were concerned about). However, the reason that her head is so small is because her brain has not been growing at a normal rate. During pregnancy it was developing correctly, but after birth for some reason it changed. The doctor said that this is normally due to some injury, but she hasn't had any. He doesn't think it is a metabolic cause, because she has not been going backwards in development, just very slowly forward. Just in case though, she will still be tested for metabolic causes. It sounds like it is more likely a gene or chromosomal issue. Unfortunately, it doesn't sound like they know much about the development of the brain. He did tell us that it is very likely that she will suffer long term effects, however, it is very unlikely that we will know ahead of time what those will be.
From here we will most likely go in for a brain MRI and blood tests to prepare for our appointment with the Neurodevelopmental Clinic.

Well appointment #1 with the Occupational Therapist is done. It was...well we didn't walk away from it very enlightened. We were given some exercises that may help Aimee to develop. We should know more after the next appointments. We did however get referred to work with the Birth to 3 therapists of WA, who will actually come out to our house to work with Aimee. At least it is easier than driving to Seattle!

Please pray for us

Isn't it amazing how one question can turn into a thousand so quickly? Please pray for us as we try to take it one question at a time. Aimee is going in this Wednesday for testing in preparation to meet with the Craniofacial Clinic and the Neurodevelopmental Clinic in October. We really have no idea at this time if there is anything to worry about, but we do know that God created Aimee to live during this time. He created her just the way she is and we love her like this, but we are also believing for the very best for her future.